NTBLCP Privacy Policy
NTBLCP is a digital health solution platform developed by nextgen community and civil
society partners, powered by Dure Technology, to enhance and support community-led
monitoring of the TB response. Respect for your privacy and confidentiality is key to the
success of community-led monitoring. This NTBLCP Privacy Policy is therefore meant to
help you understand what information NTBLCP collects from you, how the information is
used, where the information is stored, with whom the information is shared, and how you can
manage or deletet your information.
What kinds of information does NTBLCP collect?
NTBLCP collects six kinds of information. First, NTBLCP collects the personal information
you provide in the Registration Form which appears in your User Profile. The Registration
Form may require you to provide your age, gender, the type of user you are, the kind of TB
you have, whether you identify as a TB key population, and information about your health
facility. If you identify as a TB key population, in doing so you may provide personal
information about your occupation, your income status, your legal status as a prisoner, your
immigration status, whether you use drugs, whether you have a disability, or your ethnicity.
Second, if you allow it to do so, NTBLCP collects geolocation data about where your
device—and therefore oftentimes where you—are located. This data is collected using the
Global Positioning System (GPS).
Third, NTBLCP collects information about your health that you provide in the Registration
Form, and possibly in the Get Involved section or in surveys that may be conducted from
time to time in the app. This includes information about your TB, if you are living with HIV,
your health care, the health care of your family or close contacts, and possibly other health-
related information.
Fourth, NTBLCP collects the information you provide when you chat with other users in the
Get Connected section.
Fifth, NTBLCP collects the information you provide when you submit a report in the Get
Involved section. This is the information you provide in ticking the boxes that apply to you
when you submit a report about a TB Challenge.
Sixth, NTBLCP collects information about the device on which you have installed NTBLCP.
This includes unique identifiers, browser type and settings, device type and settings, and
operating system.
How does NTBLCP use your information?
The information NTBLCP collects from you is used in the following ways:
The personal information you provide in the Registration Form is used to identify you as a
unique individual and to allow you to report and obtain resolutions for TB Challenges. Your
personal information may also be de-identified and aggregated with other user’s information
for analysis to better understand and improve the TB response in your country and around the
world.
The geolocation data about where your device—and therefore oftentimes where you— are
located is used to identify and show you the nearest health facilities, to track the location of
where reports about TB Challenges are submitted, and—in aggregated, deidentified form—
for analysis to better understand and improve the TB response in your country and around the
world.
The information you provide about your health is used to enable resolutions for the TB
Challenges you report and—in aggregated, deidentified form—for analysis to better
understand and improve the TB response in your country and around the world.
The information you provide in your chats in the Get Connected section is not used for any
purpose beyond allowing you to communicate with other NTBLCP users.
The information you provided in the Get Involved section by ticking the boxes that apply to
you when you submit a report about a TB Challenge is used to enable resolutions for the TB
Challenges you report and—in aggregated, deidentified form—for analysis to better
understand and improve the TB response in your country and around the world.
The information NTBLCP collects about your device is used to facilitate updates in the app
to maintain and improve NTBLCP’s operation.
Where is your information stored, who stores it, and for how long?
The information NTBLCP collects from you is stored as digital data by a commercial cloud
computing service that is owned and controlled by Dure Technology, Microsoft Azure. With
this service, your data is stored on a physical server in the United States of America, where
Microsoft is based. For some countries using NTBLCP, your data is stored locally on a
physical server in your country. You can find out where your information is stored by …
With the exception of the information you provide in your chats in the Get Connected
section, the data collected by NTBLCP is stored for as long as the project is in operation in
your country or until you submit a request to delete your account and its data. Please see
below for how you may delete your account and data, if you so choose.
How is your information shared?
With a few exceptions, the information collected by NTBLCP is only accessible to the
individuals involved in the project at the organization implementing NTBLCP in your
country. This includes your personal information, the information you provide about your
health, and your geolocation data.
All information shared with individuals outside the NTBLCP implementing organization,
including government authorities, is stripped of all personally identifiable information. This
means your data is de-identified, so that is very difficult to impossible for anyone to identify
you or your information. Often, when your data is shared in this way, it will be aggregated
with the data from other NTBLCP users. However, you may consent to allowing your
personal information to be shared with first responders, such as the information you provide
when you submit a report about a TB Challenge in the Get Involved section.
The information you provide in your chats in the Get Connected section is not accessible to
anyone beyond the NTBLCP users with whom you chat and the moderator of the forum from
the organization implementing NTBLCP.
How can you manage or delete your information or Dure Technology?
You may manage or delete your NTBLCP account or information you provide in NTBLCP,
with one exception, by filling out the form available here … All requests made in this form
will be addressed within 30 days from its submission.
If your data has been de-identified and aggregated with other NTBLCP user data, it cannot be
deleted. However, as explained above, it will be difficult to impossible to identify you or your
data when it is in this format.
If you have any questions about your NTBLCP account or information, this Privacy
Policy,contact us
